"I'm worried that this means she has CF."

Friday, Dec. 27, 1991

     Since that night I was writing about things are getting better I guess. The next night after that (or the next) I was getting ready to take my shower while Guy was getting Ez. ready for bed. I heard a big noise from the other bathroom & asked if everything was ok. He didn't say anything so I figured it was ok or he didn't hear me. Then a couple of seconds later Ez. started screaming. I ran over there as fast as I could. He was bringing her out & said she was ok. He'd had her on his lap to brush her teeth and she'd leaned back & he dropped the toothpaste to catch her but it scared her. He acted like he didn't want me to hold her but when she's crying & screaming like that it just makes me feel like I have to hold her. He finally let me when I insisted. (Later he said he thought since he was the one that scared her he should be the one to comfort her and that he hoped she wasn't still scared of him or mad at him the next day. The next day he said he was glad it seemed like she didn't remember.) He asked me if he was scaring me & I said yes because I thought the medicine was affecting his reflexes as well as his thinking. That made him mad for awhile. At first he said he wouldn't even try to hold her & I told him he didn't have to be that extreme, that he just needed to take time to think & pay more attention to things when he was using the pain pills. He decided that he would only take the pills at night unless it got really bad during the day. Nothing else has happened like that since then. He stopped taking the pills all together about a week after the surgery.

     He went back for a checkup Mon., 12/23. They took out the staples, not stitches, all 22 of them! They put on a removable splint so now he's able to take showers. And I get to see the scar when I help him wrap his arm back up every day. It's 5" long, a lot longer than we'd expected. Guess we'll have to wait & see how much it fades. He doesn't have to go back til a week from today.

     Meanwhile, my cold is better. I finished the Cipro yesterday (actually I have enough for 2 more weeks). Elizabeth didn't seem to be getting any better so we took her to the dr. last Friday, 12/20. We were lucky to get to see Dr. Karp again. She checked her ears and had to clean out some wax but said they were ok. She said her lungs were clear but that she had a lot of green drainage down her throat. She took a specimen of her runny nose (which was & still is clear) and the lab said she had a sinus infection. She gave her amoxicillin (antibiotic) and Proventil (one of the things I use in my nebulizer) to keep her bronchial tubes open. It didn't seem like she was getting any better to me so I called & talked to a nurse Mon 12/23. She said if she's not getting any worse she wouldn't want us to bring her in & risk her getting something worse from the sick kids there. I also asked her about Ez. not taking any solid food. She was just the opposite at first - not wanting bottles & Dr. Karp said it was because the drainage made things taste bad. The nurse said not to worry unless it lasted more than a few days. I asked if that would make her stools loose & she said it would and that so would the amoxicillin. If she gets diarrhea we're supposed to give her Imodium AD.

     I didn't think to ask the nurse but had been wondering if Ez. needed a decongestant cause her nose was still runny. I mentioned that to Carole & she said it's ok to give her Dimetapp too so we started that Wed. night & her nose is drying up some. She still has a cough so there must still be drainage. If she's not well by the time the medicine's gone I guess we'll have to go back to the dr. I'm worried that this means she has CF. Guy said if she had it she'd have shown signs of it before now. I said not necessarily because this is her first winter & cold season to go thru. I certainly hope she doesn't have it.

     I'll have to write later about xmas & our 11th anniversary.